Lupus is back....damn it!

Okay so before I start bitching, let me start with the positives. (For the sake of positivity)

Gratitudes
◇ I woke up before noon
◇ I left the house today
◇ I walked 2 miles last night
◇ I made a boutique style bow for my daughter

So now that I listed the good, it might be easy to see what might be included in the bad. Last night, I went for a walk with my husband and jumped from walking one mile to two. I felt so proud of myself, but it is at these moments that Lupus reminds me that I am not normal. It literally kicks my ass as if to say, "hello, did you forget you are a sick person? Don't make me remind you again!" My body feels as if someone punched me all over.

I seriously want to, and have to, lose weight. I wanted to start walking every day in order to lose the 30 pounds I gained this year, but it is so difficult when your own body attacks you. So what have I learned? Take it slow and easy STUPID. I am determined to stop blowing up like a whale so no matter how many pills I have to pop tomorrow,  I am going to walk at least a mile. I am going to walk a mile every other day and then move on to a mile a day. I am going to take it slow but I am going to keep moving. This disease has robbed me of so many things, but I am going to fight it every step of the way!

Gripes
◇ fever
◇ joint aches
◇ muscle pain
◇ stomach pain
◇ fatigue

Summer is flying by!

Summer is flying by.  In case you haven't read any of my other posts, I am a teacher and am on a two month vacation from work! It is really flying by way too fast!

I have managed to go on two trips. One with my family to the river and a couple trip to New Orleans.  I am pretty satisfied with myself-that I was able to endure the activity and survive the weeks after.

Of course,  getting to sleep in every day and not having to go to work sure makes things so much better!  I have been working since I was sixteen years old, but it would make the quality of my life so much better if I didn't have to work anymore.  It is so hard to be a teacher and a mother with Lupus.

One thing that has been helping me other than tons of rest is gratitude. Being able to just look at the little things in my life that bring me joy and being grateful for the things I can accomplish have made me so much happier.   So here is a list of my "gratitudes":

Gratitudes
☆I walked one mile today
☆I made dinner instead of take-out
☆I wrote a blog entry

Methotrexate and it's Scary Side Effects

Okay so I had a rheumy appointment today; it was a make up day because I missed my last appointment because I was too busy cleaning my classroom. Anyway they made it very clear I would only see the PA because the doctor was booked until August so I was really only expecting refills.

Now, I am fairly new to Lupus and I have often left my appointments with more questions than answers. So, I was ready to talk to the doctor about the last shots he gave me: I felt so much better almost immediately after!  Here is the really stupid thing about this: I have no idea what he injected in my body!  All I knew is that I was in pain and wanted relief and I blindly asked 0 questions! 
This time, I asked him right away because I wanted him to know it qas helpful for about 3 weeks and then I was back to normal. Guess what it was...

Methotrexate and some pain killer I already forgot the name of! Damn this Lupus fog!!!!

Okay, so we talked about the health care crisis and the decline of education in the US (He loves to talk) and then he checked me and walked out of thw room. So I am sitting there waiting for my prescriptions and a guy comes in and informs me I am getting 5 shotsif I am willing to pay $57 out of pocket.  Okay! So when he comes back, I ask the tech what I am getting (This time I am asking damn it!) and he says four shots of methotrexate (2 on my hot spots on mu upper back and 2 on my lower back) and a pain killer on my arm.

Wow! That was three more injections than last time and I know absolutely nothing about this medication.  By the second injection, I was about to pass out. I started to feel hot, light-headed, and nauseous! I had to sit and take a break because I was afraid I would pass out!

So when I got home I looked it up and WebMD had some extremely harsh precautions.  Johns Hopkins Medical Center was a little less scary. So I hope all goes well because lately my life is spent in bed. I love my kids and am grateful for my life but pray to God every day my life changes. Let's hope and pray this works for me!

So far I have felt a little nauseated but that's hopefully it...we'll see! Please add any insight or experiences!!!

Looks like I made it!

This week I made it through an entire week at work without taking a day off! This might not seem like a big deal to most, but people with lupus know how difficult little things are. I wanted to call in so badly, but I talked myself into going to work; literally sitting on the edge of my bed at 5:30 am talking to myself out loud: "You could do this! You could take it easy! Do what you can! You could rest all weekend!"

The bad thing is that I couldn't and didn't take my daughter to gymnastics on Friday or dance on Saturday because I was so tired. Living with Lupus is a damn game of choices and trade-offs: do I pay the bills or spend time with my kids?

Well, it's Sunday today and it's turned out to be a pretty good day. I watched a movie with my husband in bed, I got out of bed and cleaned the kitchen and living room, and I actually had a meal with the family instead of in bed. All in all, a good day.