Almost an Emergency!

Today I had to work...which for a teacher during summer truly sucks. I had to sit through a four day inservice about our "new" old curriculum we tried four years ago and abandoned three years ago. Needless to say, it is a major snoozer!
Anyway, after only two days, Monday and Tuesday, I got so tired that it made me sick...I was throwing up and hugging the toilet like a drunk! So, I missed my conference on Wednesday. I wasn't too disappointed, except for the fact that I couldn't sleep because of the horrible feeling in my stomach. It felt as though my stomach was just refusing to digest my food.
Today, I joined my fellow teachers and by lunch I felt like I was having a stroke; my head was throbbing and I felt so dizzy that I thought I was going to faint. All the while the other teachers were chatting about the administrators, and I couldn't even understand the gossip! I truly felt as though I needed to go to the hospital. As if in a dream, I ended up at Johnny Carino's, and managed to order something...all the while wondering whether I should tell someone that I was about to die....or at least it felt that way.
I convinced myself that I would eat for a while and that it might have been the Vicodin I took in the morning without breakfast and that I would feel all better after I ate lunch. Slowly but surely, the conversations began to become clear...I could finally understand the gossip and I didn't feel as if my head was going to explode!
It terrifies me how close I came to making my co-workers drop me off at the emergency room...it was very close to Johnny Carino's by the way.
I wonder what they would have said?

A Great Day to Start a Blog

I found out I had Lupus about two months ago and it has been interesting to say the least. For one thing, I finally feel validated! You can't imagine how many times and how many doctors looked at me like a crazy hypochondriac..I knew something was wrong but for years all the tests were "normal". Then the diagnosis and I felt thrilled and terrified at the same time! People with lupus die! This is an incurable disease, but at least I am not crazy!

I also found out that nobody really cares as much as I do. I don't mean to sound like a baby, but what I mean  is that although this disease could kill me, no one else really thinks it is all that bad. I guess if it were cancer it would carry more weight. 

The past few weeks I have felt so alone with this disease. The only people who understand are the people who have Lupus and are on the Lupus support group chat rooms. It's funny that perfect strangers could make me feel so much better and my husband and family make me feel worse!

So, I decided I needed to start writing. I teach reading so it seems right. Maybe no one will ever read this, but if anyone does they might learn a little about Lupus and spread the word. More than that, it will help me keep track of all my crazy symptoms. So, here goes; the first post of many more to come. It seems like the perfect day to start this being that I have had an almost perfect day: minimal pain, I had enough energy to cook a meal, I am finally off steroids, and I was able to go to the bathroom. (Don't gross out; if you couldn't go, you would be cheering too!)